Site icon Chronic Illness Hotline

Racism and Racial Bias in Healthcare: A Scientific and Historical Perspective

stethoscope on charting paper with a pen blurred in the background

Introduction

Health is often described as a human right. Yet, for millions, access to equitable healthcare remains elusive, undermined by racism and structural bias embedded in the medical system. The intersection of race and medicine is not only a contemporary issue; it is rooted in centuries of discriminatory practices and pseudoscientific beliefs that continue to influence healthcare delivery today.

This blog post explores the history of racism in medicine, the science documenting its effects, and the urgent need for systemic change in modern healthcare.


Part I: Examples of Historical Foundations of Racism in Medicine

1. Slavery and Medical Experimentation

During slavery in the United States, Black bodies were exploited for medical experimentation. Enslaved people were often used without consent in clinical trials, surgeries, and anatomical studies.

2. The Tuskegee Syphilis Study (1932–1972)

One of the most infamous examples of medical racism, the Tuskegee Study involved the U.S. Public Health Service observing the natural progression of syphilis in Black men in Alabama without providing them with treatment, even after penicillin became the standard cure. Participants were misled and denied care, leading to needless suffering and death.

3. The Exploitation of Henrietta Lacks (1951)

Henrietta Lacks was a Black woman whose cancer cells, taken without her knowledge or consent, became one of the most important tools in modern medicine. Known as HeLa cells, they were the first immortal human cell line ever grown in a lab, and have been used in countless scientific breakthroughs, including the development of the polio vaccine, cancer research, and in vitro fertilization.

However, Lacks and her family were never informed that her cells were being used in research or commercialized. For decades, they received no recognition, compensation, or even basic information about the role Henrietta’s cells played in global science.

This case reflects how Black patients have historically been excluded from decision-making, consent, and ownership over their biological data – issues that remain relevant today in genomics and biobanking.

Why it matters:

Henrietta Lacks’ story highlights not only unethical medical practices, but also enduring questions about consent, race, and bioethics in research involving marginalized communities.


Part II: Examples of Scientific Evidence of Modern-Day Racial Bias in Healthcare

Racial bias in healthcare is not a relic of the past – it is measurable, persistent, and deadly.

1. Disparities in Diagnosis and Treatment

Research has shown that racial and ethnic minorities often receive:

Scientific studies:

2. Maternal Mortality and Birth Outcomes

Black women in the U.S. are three to four times more likely to die from pregnancy-related causes than white women – a disparity that persists regardless of income or education.

Factors contributing to this include:

Notably, Serena Williams’ post-childbirth complications, despite her fame and resources, highlighted how even high-profile Black women are vulnerable to systemic neglect.

3. Algorithmic and Technological Bias

Even healthcare algorithms can perpetuate bias. A 2019 study in Science found that a widely used algorithm underestimated the health needs of Black patients, allocating fewer resources than to white patients with similar or even fewer health issues.


Part III: Root Causes and Systemic Issues

Racial bias in healthcare is reinforced by:


Part IV: Solutions and the Path Forward

1. Bias Training and Cultural Competency

While not a panacea, evidence suggests that targeted anti-racism and implicit bias training for healthcare providers can improve patient-provider interactions and reduce disparities.

2. Diversifying the Workforce

Studies show that patients often receive better care when treated by providers of similar racial or ethnic backgrounds. Supporting minority students in medicine and nursing can help bridge this gap.

3. Community-Based Interventions

Community health workers, peer support programs, and local clinics have proven effective in addressing health inequities, especially in underserved populations.

4. Policy and Advocacy

Efforts must extend beyond the clinic. Policies addressing environmental racism, equitable insurance access, and social determinants of health are critical. The Affordable Care Act and Medicaid expansion have helped narrow some gaps, but more systemic reform is needed.


Conclusion

Racism in medicine is not just a historical scar, it is an ongoing public health crisis. Addressing it requires confronting uncomfortable truths, investing in systemic change, and reimagining healthcare as a space of equity and justice for all.

As individuals, clinicians, researchers, and policymakers, we have a collective responsibility to dismantle racial bias in healthcare because no one should be denied care, dignity, or life based on the color of their skin.


Sources & Further Reading

  1. Hoffman, K.M., et al. (2016). “Racial bias in pain assessment and treatment recommendations.” PNAS.
  2. Obermeyer, Z., et al. (2019). “Dissecting racial bias in an algorithm used to manage the health of populations.” Science.
  3. Taylor, J. (2020). “Structural Racism and Maternal Health Among Black Women.” JAMA.
  4. Washington, H.A. (2006). Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present.
  5. CDC, “Racial and Ethnic Disparities Continue in Pregnancy-Related Deaths.”

If you believe in a kinder, more connected world for people with chronic illness, injury, pain, disability, or neurodivergence, please share this post and consider supporting our mission today.

Follow us on LinkedInThreadsInstagram, & Facebook

Project Build is a wholly owned Project of AnchoRRa, a registered public charity, which provides nonprofit status. Your donation is tax-deductible to the extent provided by law. More info & to donate: chronicillnesshotline.org

Exit mobile version